I want to start off by apologizing for my last post because it was "boring." Boring is not always a bad thing in my life, especially when it comes to medical complications. But my dad was upset that he did not get a shout out. So here it goes, "Hey Dad!" He was also upset that I did not talk about getting a new roof on my car or getting a new mattress over break. My car flooded over break and we thought it was a leak in the roof. Turns out it was not the roof, but the roof was shot so we got a new one and it looks so good! I also finally got a new mattress after 18 years. I have only slept on it 4 times but those were 4 great nights! I have been asking for a new mattress for 2 years now. You don't realize how excited I was to get a new one! It was like finding out you are going to Disney World...okay that is an exaggerating but it was definitely exciting! Now on to something else...hahah
I want to explain about how I am "getting better" because I think people are a little confused. Neither of my diseases are curable...yet. I am not cured or fixed by any means. My symptoms are being treated with medication, the pacemaker, and all of the extra things I am doing for my POTS. I am doing better though. I feel better; I have more energy than I had before the POTS diagnosis. But by no means am I cured. Both of these diseases are chronic, meaning they are long term. But there is a chance that I can "grow" out of them. The magic age seems to be between 21 and 23 for both of them. I hope that I will grow out of these diseases but I want to be realistic in knowing that it could not happen. I mean I really don't understand how my stomach could just magically start working again one day. Lance (my little brother) seems to already be growing out of POTS so I feel like it may not happen for myself with POTS because I am 3 years older than him. My gastro doctor at Shands at UF in Florida said that I could easily have the pacemaker for the rest of my life. So, although I do look and feel better, my insides still don't work the way they should. Then again, doing all the things for POTS is helping my blood flow and autonomic nervous system but my stomach is still not working (as far as we know). I hope this helps y'all understand a little bit more about what I mean when I say I am doing better!
Until next time,
A :)
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