Hey y'all! I'm sorry I didn't post yesterday. I wasn't feeling up for it. We have good news though! I was diagnosed with POTS/dysautonomia. This is a syndrome of the autonomic nervous system. It is what Lance has so my family is pretty well versed on it already. Today, we were supposed to meet with my doctor but she was sick so we had to push back my appointment until tomorrow at 2:45. Lance and my mom are flying home tomorrow (so Lance can go to homecoming on Saturday night) from an airport that is 1.5 hours away from here. We are bringing them to the airport and then me and my dad are driving back to Mayo for my appointment tomorrow afternoon. I had an education session with a nurse practitioner yesterday and she went over all of the things that we already know because of Lance. POTS is something that a person is supposed to grow out of when it is found in teenagers and young adults. We think that I have had POTS since I was a sophomore in high school when all of my symptoms first started to present themselves. POTS has only been diagnosed in teenagers since 1999; it is very new disease and very little is known about it. There is not very much research on it either. This is similar to my gastric stimulator in the fact that we are kind of rolling with what the doctors can do for us and seeing what happens. Things that I have to do to feel better: eat lots of salt, drink 2 to 4 quarts of fluids (mostly water) a day, exercise 30 minutes a day (I will work my way to that), sleep 8.5-9.5 hours each night, and take the medication my doctor prescribes for me. Also, no more caffeine for me. I will know more things specific to myself and my case tomorrow when we meet with my doctor.
Until next time,
A
No comments:
Post a Comment